TableĀ 1

Objectives, research questions and methods for phase I

ObjectivesQuestionsMethods
Explore the experience of the stroke survivors and their caregivers in accessing stroke rehabilitation services
  • What impact does a stroke cause in the life of a stroke survivor, and his/her family and caregiver?

  • How does an individual affected by stroke and his/her family organise themselves to manage the effects of stroke?

  • What measures will stroke survivors and their caregivers take in order to manage disability following stroke?

  • What is the general understanding of the stroke survivor and his/her caregiver about stroke rehabilitation?

  • What kind of stroke rehabilitation services are generally available to stroke survivors, from where and from whom?

  • At what phase of recovery are these rehabilitation services available to stroke survivors?

  • How do stroke survivors usually access stroke rehabilitation services?

  • What is the general perception of stroke survivors and their caregivers on the quality of available rehabilitation services?

  • What are the difficulties faced by stroke survivors in accessing rehabilitation services?

  • What is the cost of obtaining stroke rehabilitation services and what is the impact of this increased expenditure on the family?

Survey using structured questionnaire and in-depth interviews with stroke survivors and their caregivers
Assess the information needs of patients with stroke and their carers
  • What information do stroke survivors and the caregivers need to manage disability following a stroke?

  • What kind of information is available to them, from where and from whom?

  • At what point of time or phase of recovery (acute, post-acute, rehab, long-term care), is this information available to them?

  • What is the quality of available information (regarding correctness, relevance, reliability and understandability)?

Survey using structured questionnaire and in-depth interviews with stroke survivors and their caregivers
Assess the rehabilitation needs of patients with stroke
  • What are the various kinds of disability experienced by stroke survivors following stroke?

  • What are the various rehabilitation needs (physical, psychological, social) of stroke survivors and their caregivers?

  • What kinds of rehabilitation services are required to address the needs of stroke survivors and their caregivers?

  • What kind of rehabilitation services would enable stroke survivors to be functionally independent following stroke?

Survey using structured questionnaire and in-depth interviews with stroke survivors and their caregivers
Assess the barriers and facilitators for rehabilitation of stroke survivors
  • What are the present policies and programmes for rehabilitation of persons with disabilities especially following stroke?

  • How are these rehabilitation policies and programmes implemented? Are there adequate resources (human resources, material and financial resources) for rehabilitation of stroke survivors?

  • How are these rehabilitation services delivered to stroke survivors?

  • What are the constraints in providing rehabilitation services to stroke survivors?

  • What can be done to address these constraints?

  • What are the facilitating factors for provision of rehabilitation services for stroke survivors?

In-depth interviews with health professionals providing stroke rehabilitation services in hospitals
Assess the experience and comfort of the stroke survivors and their caregivers in using Smartphone technology
  • Has the stroke survivor and/or caregiver ever used a Smartphone?

  • What was their experience in using Smartphone technology?

  • How long and for what purpose were they using the Smartphone?

  • What abilities are essential/required to use a Smartphone comfortably?

  • Will a Smartphone-enabled carer-supported education programme be useful for stroke survivors?

  • What are the advantages and disadvantages of such interventions?

In-depth interviews with stroke survivors and their caregivers
Recommendations for action
  • What are the potential rehabilitation strategies to facilitate functioning, participation and independent living among stroke survivors?

  • What are the resources required to implement the rehabilitation strategy?

  • Is the strategy feasible and sustainable?

  • How can the proposed rehabilitation strategy be implemented and made sustainable?

  • What could be the potential barriers/problems for implementation? What are the possible solutions to address the implementation barriers?

In-depth interviews with health professionals providing stroke rehabilitation services in hospitals